Posts filed under ‘Colon Stories’

My Thanksgiving

I’ve eaten like crap all day. It’s not necessary causing a horrible day bathroom-wise, it’s just made me feel funny. Maybe just a little “off.” But some days, I need to do this. To remember I’m still human, and experience what I have to be thankful for.

In the season of Thanksgiving, I have much to appreciate. This entire year has been full of fear, suffering, pain and readjustment from a second colon surgery and second diagnosis of cancer. But looking at the experience that happened almost a year later, I am in a much better place than I ever thought I’d be.

I’m able to still enjoy life. I let myself heal after surgery for a few months and tried to keep my physical activity to a minimum and eat very little, bland food. But after awhile, I started feeling better.

I can once again eat the amazing onion rings at the cool bowling alley. I can visit “Kansas City’s Top Mexican Restaurant” and have a decent evening following the meal. I can go to boxing class again and run three miles. Sure, I’ve “gotta go” more than other people. But it’s so worth it now that I can finally live again.

There’s a lot of grumbling to be had when you’re a semi-colon. It does make life harder some days, and is a huge pain if you combine the wrong food with the wrong stress level on the wrong day. But other times, it’s really not so bad. And thankfully for me, those other times are becoming more frequent than not. And for that, I am very, very thankful.

November 13, 2009 at 9:26 pm 1 comment

The PET Scan Experience

Today’s story veers from a colon-specific tale, but deals with something many semi-colons face: PET scans. I receive these scans because my colon was removed due to cancer. Here was my experience yesterday…

“Danielle?”

The nurse called my name and I entered the Radiology door. She escorted me to a closet-sized room that was very medical-feeling except for one frame hanging on the wall displaying her certificate of completion for IV therapy. I felt relieved when I noticed she had 10 years of experience. Plus, her cheery uniform matched her happy personality and helped calm my anxiousness.

She explained the routine for the morning: IV, infusion, sit in the dark, scan.

“Oh, and do you want a blanket?” she asked.

“No thanks, I’m OK.” I said.

For reasons I don’t understand, they keep the infusion and scanning rooms very chilly. She handed me a waver to sign, acknowledging that I understood the chemicals injected into my body proposed threats of kidney failure, hives, cramping, nausea, growing three arms, etc. I prayed that I wouldn’t suffer from the rare complications and signed my life away. (Just kidding about the three arms thing… at least as far as I know.)

The Lord has blessed me with good veins, so the IV was no big deal. She gently inserted the needle and taped down the plastic device hanging out of my arm with sturdy tape. She left me to rest and passed the torch to the PET technician. He was a taller guy who you didn’t want to mess with, yet friendly at the same time. It must have been his green scrubs. My favorite color. He entered the room.

“Need a blanket?” he asked.

“No thanks, I’m good.” I said.

He walked to the back of the closet and opened a metal safe in the wall. The safe had some sort of radioactive needle logo on it that gave of the impression of  “CAUTION! THIS CONTAINS STUFF THAT IS EITHER DANGEROUS OR REALLY EXPENSIVE” on it. He pulled out a very thick, silver capsule that was sweating due to its cold temperature.

“This contains radioactive sugar isotopes,” he said.

“Great, I thought. Now I’m going to freaking glow.”

He proceeded to push the isotopes in the big, silver tube into my IV. I didn’t feel anything and in a few seconds, I started glowing! Just kidding, nothing happened.

“You sure you don’t need a blanket?” he asked again.

“I’m sure, I’m good.” I said. “Thanks though.”

He left the room and left me to marinate. For another reason I don’t understand, I had to sit in the dark once I received the injection for about 45 minutes. He was nice left the door cracked so I could read my book.

“Geez,” I thought. “It sure is nice when they remember what it feels like to be human.”

The 45 minutes went pretty fast thanks to my book.  After a while the isotopes had gotten to me and I thought my bladder was going to pop. Plus, it ran through my semi-colon quickly as well. I got permission from the cheery nurse in the colorful uniform to use the restroom. I slowly stepped into the hallway, wondering if I would shrivel up in the light like the Wicked Witch of the West, but soon realized I was fine. I headed down the hallway to save myself from damaging yet another important organ and give my bladder a rest.

I was greeted by the PET technician outside the bathroom door as I made my exit. He was ready for me. I entered the room to see a large scanning machine. I hopped up onto a narrow sliding tray that went all the way through the machine.

“You need a blanket now?” he asked again.

“Sure, I’ll take one this time.” I replied. It was the least I could do, I felt bad for saying no over and over.

He propped my head with a pillow and supported my slightly bent knees. To take friendliness up one notch further,  a serene photograph of leaves falling near creek was placed in lieu of a ceiling tile so his patients had something pretty to look at.  I was impressed.

The machine began to slowly move and I quickly shut my eyes and held them tightly. I’m not typically claustrophobic, but for some reason MRIs and PETs can give me the hibbies.

“Remember, you’re not strapped down. You could get out of this. You’re OK. Breathe deep,” I told myself as the machine turned on and the scan began. “All you have to do is lay still for 25 minutes, and then it’s over.”

I tried to picture myself in a playground tunnel, probably a bright red one. The red ones look the most fun. I imagined that I was running from “bad guys,” and that I had chosen to crawl into the middle of the tunnel to hide out. I even tried to convince myself I heard muffled voices from outside the tube as bad guys ran through the pea gravel looking for me.

That worked for a few minutes. For the rest of the time I prayed about everything I could think of to take my mind off the fact I was laying on a cold, skinny tray in the middle of a large, thick tube scanning my vital organs for any traces of radioactive sugar isotopes attached to cancer cells.

I began to hear movement in the scanning room and accidentally opened my eyes. To my surprise, I was on the other end of the tube.

“That was painless,” I thought.

“You’re all finished,” he said.

The technician removed the IV from my arm and told me I was good to go. I thanked him for being so kind. As I sat up, I made sure to leave the blanket on the tray. I gathered my things and headed back toward the Radiology door.

Later, I was thinking about how funny it was that they kept offering me a blanket even though I was wearing sweats and it finally dawned on me. Yes, it was really cold.  But in that moment, I saw life through their eyes. Seeing patient after patient worry in fear for their upcoming test as they put in IVs, watching them sit in dark closets and chase away anxieties, and directing them to lay still on a tray while you scan their bodies for cancer cells. A blanket was the only real way they could help and show they care.

I walked out of that clinic not knowing what my future held. PET scans are awesome because they detect cancer cells in your body. PET scans are scary though because they detect cancer cells in your body. I didn’t know how my results would end up. It could have gone either way. But even though the anxiousness started to creep back in, it didn’t matter. In that moment, I felt cared for. I appreciated my experience. I remembered the thoughtful staff members who offered hope in the midst of trial. And after a long day of testing, I was so thankful that I took the blanket.

November 11, 2009 at 8:37 pm 2 comments

My Mexican Emergency

It was a beautiful summer evening and my husband and I had just returned from dining on Kansas City’s Plaza. Earlier that day we filled up on yummy appetizers, tacos and drinks at Mi Cocina, the fancy Mexican restaurant in the area.

When we got home the temperature was perfect for a walk around our neighborhood with the dogs. We live in an old house from the 1920s and love walking the streets to see the other houses in the area, although it often makes us feel like the weakest link. Our neighbors have beautifully manicured lawns and perfect balls of hydrangeas blooming amidst their tailored flower gardens. We’re lucky to keep the red geraniums alive in our two planters stationed at the end of our walkway.

We strolled along our usual path and headed toward the downtown area. We walked past the tall, traditional churches, cute downtown stores selling fine home decor, and local restaurants. On this evening the weather was so gorgeous, we kept walking to see the even bigger, older houses on the other side of downtown. Our dogs were loving the extra long walk just as much as us two newlyweds who were swinging our folded hands, walking down white picket-fenced neighborhoods and taking in our little slice of the American dream.

As we got further and further away from home, my stomach began to grumble and growl. I kept going thinking that I could “walk it off,” but quickly learned my body wasn’t thanking me for a long walk and delicious food. It was getting ready to rebel. I felt my stomach drop and the unique sensation of knowing that everything I ate had entered my intestines. I mentioned to Mike, “I think I’ve got a problem,” and we started walking faster. All of the sudden I didn’t care one bit about the old houses’ beauty and instead wondered how many restrooms they had.

Although I’m pretty outgoing, I’m also a little shy. I wasn’t about to knock on a stranger’s door and ask to use their restroom. I didn’t have time to explain the “I have a short colon, I had cancer, I ate Mexican tonight” story to someone whose bathroom I was after. So we kept walking faster.

We neared downtown and realized that it was so late in the evening, all of the stores were closed. I began to panic at the thought of acting like a two-year-old and having an accident right in the middle of the street. Sweat rolled down my face as I remembered God’s promise of  “ask and you shall receive. ” I tried to ask nicely, but stressed that I needed a reply NOW.

In the midst of my mini-panic attack, I heard bells chiming from the baptist church behind me. We had married in their beautiful sanctuary and were previously involved in their young adult ministry which met in a small detached building near their back parking lot. Although we had switched churches a year ago, we looked at each other and wondered if the code to the door of the small building had remained the same.  We hurried to the building and Mike typed in the code as I praised God for his impeccable memory. I heard the door slide open. We quietly tip-toed into the building and located their restrooms. I ran into the womens’ restroom, saw there wasn’t any TP, and sprinted back into the hallway and into the mens’. Finally, my crisis was averted.

Needless to say, we never returned to Mi Cocina. It has actually gone out of business since our visit. Although my immediate emergency was blamed on my semi-colon, Mike also had issues that evening which led us to believe something was wrong with the food. We’ve since taken many walks, however not returned to the other side of downtown. Maybe one day we’ll get enough nerve to go back. And although we no longer attend the baptist church, we feel forever grateful and debted to them. We’re thankful for their detached building in the parking lot, and that they never change the code.

November 10, 2009 at 3:35 pm Leave a comment

Bottoms Up

Welcome to the latest blog about colons.

I’ve created this blog for two reasons.

1. I am a young colon cancer survivor.

Actually, I’ve had colon cancer twice. I’m 25 years old. I’ve only got about 18 inches of my colon.

They say it’s good to have a place to let off steam. So I’ve created this blog. This will be my “dumping spot” for all things colon-related. I will be as candid as possible in my stories.  I hope people with normal colons will find more appreciation after chomping down that plate full of refried beans without thinking twice, and my fellow semi-colons will find comfort that they’re not alone – and even laugh with me about what we go through.

2. I love to write.

Anne Lammott says to be a good writer, write every day. So my topic of choice that affects me every day: my colon, or lack thereof. Get ready for tales of the good and the bad. Maybe living through such a dramatic life event will have some rewards in the end.

So with that, welcome to blog. Let the games begin…

November 9, 2009 at 5:28 pm Leave a comment

Newer Posts


Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 69 other subscribers

We're a hit!

  • 76,407 hits