Accepting Infertility

I’ve pushed this post away for a long time. While it’s no secret to many who know me that infertility is an issue I face as a result of my cancer treatment, I think the layers involved surprise us all. I tell my story for a few reasons:
– writing is healing
– others out there will be facing the same thing too
– there is a Peace that passes all understanding available to all

The story starts here. I woke up, somewhat foggy, to my parents gazing over me in my hospital bed. Although I didn’t expect to hear that doctors had found cancer again, the look in my parents’ faces wasn’t too convincing. The good news was that indeed, no cancer had been found on this second surgery that suspended my ovaries into my abdomen. The bad news was that the surgery itself, performed to save my hormone function before radiation, had just made me medically sterile.

My mom looked like she had seen a ghost. My dad looked so guilty. All the while the doctor reminded them that this was a life or death situation – she had to focus on saving my life at that point. My ability to create future lives was null. They were upset, but as they broke the news to me, my 17-year-old self wasn’t bothered. I was happy to be alive, and parenthood was so far off my radar. I figured that it was one less hurdle I’d have to deal with.

I lived with this perspective for many, many years. Even when I got married, Mike had been with me through all of this and was supportive. We knew what we were getting into (or not getting into) as we tied the knot and discussed family planning. We saw our situation as special and unique. We felt invincible. I was thankful for a testimony and a story of survival. We’d tell people that we were planning to adopt one day when asked about kids. We “high-fived” over the fact that I’d never have to be pregnant. It was our special treat, all until it started to hit me one day.

Whether someone has faced infertility because of cancer or not because of cancer, the emotions are the same – they just come at different times. As we started to research options for adoption a few years after we were married, I took notice of how many agencies addressed the emotions tied to infertility at the beginning of their orientation meetings. Early into the process, I would shrug it off and feel so thankful (and unfortunately prideful) that I didn’t have to go through the pain of infertility – the feelings of mourning, loss, depression, jealousy, and oh so many other monsters. I knew early on that I was infertile, we skipped the years of trying with no result. But as the years have gone on, our personal family tree has grown, and many friends have maxed out our church nursery’s capacity, I’ve begun to understand the stories I once saw on those adoption orientation videos. I am no different. My invincibility has slowly slipped away. I’ve realized that nobody who faces infertility is immune to what comes with it.

As our journey to parenthood has become something that we really consider and start to want, we’ve had to face some big issues. I’ve had to drop my pride and acknowledge that I do feel the sadness and grief when it comes to this issue. While I’m not particularly devastated that I can’t carry my own child physically, I do get sad sometimes when I think about how we’ll miss out on the experience in general. The “she looks like you,” or “when are you due?” or “feel him kicking here,” comments will never be guided our way. And while in complete honesty that IS hard on some days, I have come to find one thing that helps.

Sinners become free when they accept Jesus and recognize their sin. Alcoholics become sober when they recognize their addition. And as an infertile woman, I’ve found so much healing in identifying and recognizing one big word: LOSS. For so many years, I’ve tried to be Super Woman and let all things bounce off me. And in a way, you have to do that if you’re going to get through surgeries, treatments, scopes, scans, and more surgeries. I thought it worked the same way with emotional issues such as infertility. But I’ve thought wrong. I can’t be bullet proof toward everything.

I’ve finally come to terms and accepted that I feel loss over this issue. A loss that isn’t only mine, as I know that our families have to feel some of this loss too. And while it is sad, it is hard sometimes, and it’s downright frustrating, accepting our situation has helped me start to pick my head up and look forward to what’s ahead. We do have the opportunity for a very unique path to parenthood. I don’t have to go through a physical pregnancy to become a parent. And in the meantime until that day does come, I get to be Aunt B to so many kiddos who touch my life in such special ways.

I share my story not to gain pity nor admiration, but to be honest with one of the deepest-level issues that my cancer has touched. I don’t talk about it much in person because it’s hard to know what to say. It’s not like someone has actually died, yet in a way the emotions are still the same. Plus, the last thing you want as an infertile person is to make a fertile person feel guilty. And while that seems silly, it’s more common than not.

I can’t really tie this up with a pretty bow and say that the issue is dealt with, and I face it no more. But I do share that I’ve come through the phases of indifference, then denial, then mourning, then jealousy, then bitterness, then sadness, then accepting the loss, and now to looking forward to what’s ahead once again. I know that at any point I might jump back into a former phase and have to work through it all again. And while it’s a battle that I continue to face, I know that just like the scar running down my abdomen, the pain associated with it will fade over time.

God’s got big plans for us. I know that with all of my heart. And while some days might be an emotional bump in the road, I still hang on to the knowledge that all of this is part of His perfect plan and has happened for a reason. One day, this will all make perfect sense, and I wouldn’t have had it any other way.

 
A quick answer to questions I am asked often:
– Yes, we COULD TRY TO have our own biological children if we chose extensive infertility treatments. We’re uncomfortable with this high-risk, pricey option and have always planned to look into adoption.
– Yes, I still have a period. Moving the ovaries up saved the function, just made the natural path of the egg longer, thus making it (near) impossible to conceive naturally. The surgery was successful in moving the hormones. No, the surgery cannot be reversed, and if it did, it would be more extensive than trying to extract the eggs would be.
– This was almost 10 years ago. Now, many doctors encourage young patients to preserve eggs before treatment. I think enough awareness of survivors losing fertility post-treatment has helped people now facing similar situations. I would recommend to anyone who is younger and of child-bearing age to consider preserving eggs/sperm before treatments. You don’t have to, and search your heart and what you feel about it. But – I recommend at least exploring the options and being confident in a decision you make – not a decision that is made for you.

October 16, 2010 at 11:03 pm 2 comments

The Seven Levels of Healing

I recently completed a course called “The Seven Levels of Healing” hosted by my oncology office, Kansas City Cancer Centers.

I was initially introduced to the 7 levels class by my treasured Nurse Kim. Actually, the last conversation she and I ever had was about this class. She lit up the room with excitement and hope as she talked about the opportunity to offer this course to all of KCCC’s patients. She had gone through the class herself and absolutely raved about it. After that day, I was sold, but had not signed up yet. After her sad departure from this world, I knew I had to go through it and not wait another minute. Not only had I been facing some issues that the class could help me with, but it was a way to honor my friend and keep her work going.

When I signed up for the class, I was nervous, excited, and clueless about what was to come. I saw a counselor this summer for several weeks and was curious if the class would cover the same topics. It did cover some of the same topics, but offered me a totally unique and surprising experience that I could have ever imagined.

The course is broken up into seven levels:
1. Education & Information
2. Connection with Others
3. The Body as Garden
4. Emotional Healing
5. The Nature of Mind
6. Life Assessment
7. The Nature of Spirit

Each week offered me a new perspective on how to handle life with cancer. I walked away realizing that my body is a garden, not a machine, that must be carefully tended to. I was reminded about the power of our thoughts, and of unharbored bitterness and forgiveness. I had a host of others cheer lead me through some frustrating test results one week, and I was faced with the uncomfortable situation of thinking about my personal bucket list. I was encouraged that the secular class covered the role that the spirit plays in our physical healing.

This class was absolutely fantastic, but what was even more awesome was the group that I went through the class with. As a teen survivor, I have not been one to jump on the “support groups” train in the past. I have never been against them, but avoided them as I knew I’d be by far the youngest person in the room. Now that I’m in my twenties, I am still usually the youngest person in the group, but there’s often a thirty or forty-something in there with me. And while age has held me back from joining groups in the past, this experience quickly taught me that age doesn’t matter when you’re dealing with cancer – all of us could relate with one another in a deep, very emotional way. Like many of my experiences with the Colon Club, this group of a dozen strangers or so quickly became close friends over the course of seven weeks, and I pray we continue to keep in touch.

I am thankful for the Kansas City Cancer Centers for offering this class. It really did feel like my doctors and nurses were giving back to me in a way. It was of no charge to me and my husband was able to come with me, too. It was led by two nurses who, like my Nurse Kim, believe in the program so much, they volunteer their time to lead the group. It is informative, impactful and mind-altering. It’s helped me view cancer not as a monster hiding in my closet, waiting to strike again – but as a beatable, manageable disease that comes with a lot of support from others who’ve also been through it. If you’re in the KC area and diagnosed with the Big “C,” I strongly recommend checking out this class at KCCC. It will help you heal in ways you had no idea you were hurting.

October 6, 2010 at 5:35 pm Leave a comment

Fig Tree Cafe & Bakery

One of my favorite things in the world includes supporting local eateries. While I’m not a fan of “bucket lists,” IF I had one, eating at local joints very often would definitely be on there!

The Fig Tree Cafe & Bakery is a ray of sunshine along the 291 Hwy strip in Lee’s Summit. I was delighted to hear that my hometown had a new venue that touted local, mostly organic menu options. And my first visit for breakfast did not disappoint!

Located in the spot held by popular pizza place Minsky’s for several years, this local foods restaurant is worth a visit! I’ve personally had their vegetarian omelet and grilled chicken salad (separate visits), and will say that their hummus and reuben sandwich looked quite yummy as well! Their wait staff is friendly, food is fresh, and organic coffee is hot. And, it’s all at a very reasonable price.

If you’re in or near the Lee’s Summit area, I encourage you to give this new eatery a try and keep these local, fresh, organic places in business!

Fig Tree Cafe & Bakery
817 NE Rice Road
Lees Summit, MO
www.figtreecafels.com

October 5, 2010 at 10:38 pm Leave a comment

Entering Aunthood

Life is full of so many wonderful blessings. And thanks to my sister (in-law), as well as her husband Jake, ours just got a lot fuller. That’s because this semicolon gal is an AUNT!

Enjoy this glimpse of our new sweetheart Shiloh. She made her Aunt B’s heart so full upon her arrival. These are the times that I remember why it’s worth fighting, persevering and getting through some of the harder days.  I cannot thank God enough that I got to experience meeting this little one this week. I’m sure this is just the beginning….

September 16, 2010 at 5:59 pm 1 comment

Danielle M.D.

I’m often referred to by some as my friends as “Danielle M.D.” Affectionately nicknamed (I’m sure…), I am often picking up on someone’s slightest clue that they don’t feel well and trying to help them figure out why. While it ends up driving them crazy and freaked out that they have the strangest disease known to man, I like to think it helps widen their awareness of their bodies. Either way, I hope to make them realize that whatever the symptoms, it’s important to go see a doctor and get it checked out.

While it’s often a joke that all conversations with me turn medical (or poo-related), I started thinking the other day why that’s the case. I mean I’m not trying to sabotouge a fun time and be the downer. And good friends being candid about bathroom habits and funny body happenings is usually a good time. But even when I have no intention of bringing up the health-side of things – it always finds its way to come up when I’m around.

I’m realizing, or maybe just accepting, that this is life for me, and that it won’t change. And I’m not certain that it should, for that matter. My life was radically impacted by strange symptoms that went on way too long, and finally a doctor visit that ultimately saved my life. And while I know most of my friends aren’t dealing with life-threatening illnesses when they mention something’s wrong – I can’t help but be extreme and plead with them to get it checked out. You absolutely never know what’s happening until you get it checked out.

So while I might continue getting teased, or see a million eye rolls, as I continue to help people navigate through feelings of sickness and unhealth, I will wear my imaginary nurse’s hat with pride. Not because I have all of the answers, nor because I’m medically trained. In fact, it’s the opposite. It’s because part of my story is telling my story – and the message of prevention and care must go on. I had no idea what was wrong with me, but I wish that I would have shared my symptoms much earlier with someone who would have known to let me know that something wasn’t right. Lucky for my friends, I will be that person for them. And although I will continue to freak them out and talk medical, I promise to not bring up poop at the dinner table.

September 12, 2010 at 5:21 pm 2 comments

Welcoming Dr. Oz to the Colon Cancer Cause

It feels good to have one of the most reputable doctors (granted, he’s on TV) talking about your cause.
He’s putting Katie Couric to the test for sure.

This week, Dr. Oz opened up his show’s season premiere by giving a very personal look at his colonoscopy.
He went in for a routine scan since he turned 50 over the summer, and came out shocked and stunned.
His first-ever colonoscopy found a pre-cancerous polyp that had it not been removed, would have turned to cancer.
Thanks to my mom for mentioning the show to me, I had no idea.

I found the episode to be quite emotional, as did Dr. Oz.
The look on his face showed that he was totally surprised by the results – something I can definitely relate with.
Nobody thinks (especially those who are generally healthy) that they will get colon cancer.
It especially tugged at me when he realized what it meant for his kids. He knew it was a game changer.
When your path report comes back and says your body had started to turn that way, it’s unsettling.
I’m so thankful that he caught it early and avoided even a stage 1 diagnosis.

I didn’t think I could get colon cancer it at age 17, and then again at 25.
A host of my good friends never expected the diagnosis in their 20s, 30s and 40s either.
Nobody thinks that their body is growing polyps, and especially the pre-cancerous kind.
And especially the perfectly healthy Dr. Oz.
But as he showed the world, pre-cancerous polyps and colon cancer CAN (and does) happen to anyone.

If anyone saw the episode – don’t freak out. I don’t know why these people on TV stay awake for their colonoscopies.
I’ve never been awake during one, and I’m always sedated and have a nice sleep.
The gallon prep they showed is also something of my former days – the prep I do is much easier.
But the multiple bathroom trips, bloating and lovely hospital gown are all the same. Sorry about that.

Colon cancer is no joke.
I know that people can get tired of hearing about it and ignore the scans due to the prep, but it’s time to stop waiting.
A colonoscopy saved Dr. Oz’s life, it saved my life, and it will save many more.
Colonoscopies are must-haves for everyone, just as mammograms are for women. There’s not really a way around it.

So – if you’re over 50 and have not have a scan yet, call and get one set up today.
If you’re not over 50, but you have a family history of the disease (AHEM all of my aunts, uncles and cousins), get screened earlier and don’t mess around if you have ANY symptoms of the disease.
If you’re African American, you need to be screened closer to age 40-45.
And if you have any unusual gas, bloating, bleeding, weight gain/loss, or any other strange stool issues, please get it checked now.

September 9, 2010 at 11:39 pm Leave a comment

How often should you go number two?

Ahh, our second session with Dr. Taormina from Midwest Gastroenterology! Today’s question applies to most normal people in the world (AKA those with regularly sized colons.) But hey – they go poop too.  So fellow semicolons, I apologize. We’ll get back to our stuff soon!

Dear Dr. T,
How many times should the average person be going “Number Two” each day?


Dr. T’s Answer:
It varies, depending on the person. Some go 2-3 times daily and others go once every 3-5 days!

August 31, 2010 at 3:36 pm Leave a comment

So I thought I would start a garden…

As most of you know, this was my big year: I was going to start a GARDEN! I come from a long line of green thumbs, and especially on my mom’s side. My grandma had a garden the size of Texas (kid-view of course) growing up, and my mom followed suit and planted one when we were kids as well.

I basically knew what to do. Thanks to a little help from Triscuit’s gardening site (which is fabulous by the way), I was for sure good to go. I even had a woman from church who is a Master Gardener come over and give me advice for the trek. I was excited, confident and excited to grow my own food!

The Beginnings of The Garden

It started off so well. To take it slow and ease myself into my new hobby, I decided I’d do a very small garden – a 4×4 bed. I bought a kit from the hardware store that even made assembly easy (no messing with the lumber yards of nails for me!) I knew I wanted to do green beans and zucchini – my favorites – and then decided to do a small pepper and tomato plant. I had marigolds to keep the rabbits out, and even cleaned out my hairbrush over the garden to make sure the bunnies and other animals for sure stayed out!

The Garden Grew

After a few weeks, and a few good rains, my garden began to grow. I was so excited as I saw success with my little plants emerging from the soil. I was particularly fond of “Bean” as I called him – my green bean plant that rose up from germination to make my gardening experience a success. “Zuc” soon began to steal the show as his leaves grew large and magnificent. And “Pep” and “Tom” held their own as they began to produce fruit before the other two. It was a harmonious symphony. At one point, I even had a salad thanks to Pep and Tom – with two of the veggies coming from my own hard work!

Little Bean

Mid-Bean

Big Bean

Zuc

Pep and Tom

First Fruits

Then One Day…

I feel like Shakespeare as I continue my story, because as he showed in his great writings – some amazing and beautiful stories end in tragedy. As the summer continued to grow hotter and hotter, I continued to water and watch over my little garden. A question I had been often asked as I shared my plans for gardening was that of my two dogs. Known for occasional mischief, and especially in (or getting out of) our backyard, others were concerned about the trouble they might cause to a delicate garden. I wasn’t worried about them, and the first two months had proven me right – the dogs hardly went near the garden. I assumed they knew how important it was to me, so they helped watch over it and keep the rabbits out.

Well, let’s just say I learned my lesson. One day I felt bad for the dogs because I was locking them up in their kennel so much. Mike had been gone for nearly 10 days, and I knew they were dreading the cage once again. I decided to “reward” them for good behavior and let them stay in the backyard for the day. It hadn’t crossed my mind that they might happen to take an interest in the garden that day, or that this would happen….

D-day

Not just tramped on, but DUG up

Yes, Joey’s still alive

Lindley is too

Lessons Learned

So, my first summer of gardening ended more abruptly than I thought it would. While I typically steer away from writing the tragedies, I realized that they are sometimes unavoidable. My garden had a sad, sudden ending. But I did learn several great lessons, even from year 1 and I was able to eat at least ONE salad from it.

Here are few of the nuggets I learned:

– Don’t feel bad for dogs. They’re animals. Lock them up, go with your better judgment. They’re just dogs.

– Gardening can easily be paralleled to a spiritual life in the sense that if I don’t watch over my faith, tend to it and keep out pride, unforgiveness, doubt, blame, etc – it will eventually erode away or have the tendency to be dug up.

– A garden is also like a body. It must be properly cared for, hydrated, and watched over. “Dogs” can also creep into the body and wreak havoc if it’s not well attended to.

– Don’t give up. Food is food, and try again next year. There’s always the farmer’s market.

…… until next year!

August 27, 2010 at 5:46 pm 3 comments

Butt Station

One of the best random gifts I’ve gotten lately: A Butt Station!

My amazing husband found this online and KNEW that it was just what my desk needed. I mean, it’s a colon blogger’s dream gift! Not only does it hold pens and post-its, but paperclips and tape as well – all in the disguise of a green man sitting on a toilet! Thanks, Love!


August 24, 2010 at 10:32 pm Leave a comment

Can Twizzlers Make Your Poop Red?

By far, one of the most common Google searches that leads people to my blog is, “Can Twizzlers make your poop red?” So – I asked our resident SemiColon Blog expert, and here’s what Dr. Taormina from Midwest Gastroenterology had to say:

Dear Dr. T,
Can eating Twizzlers make your poop red?


Dr. T’s answer:
Yes. The dye in Twizzlers will make your poop red, depending on how much you eat and how rapid it transits the gut. Beware the sugarless variety ! It has sorbitol and eating enough of that will give you red-tinted diarrheal stools!

So there you have it, blog readers. Yes, Twizzlers CAN make your poop red. Now – if your poop is red, like blood, and you haven’t been eating a bag of Twizzlers, get it checked out.

August 6, 2010 at 1:46 pm 1 comment

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